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Lisa's story

Lisa is a very special child,” explains Mara Potop, an early intervention specialist who works at Sense International’s Early Intervention Support Centre in Iasi, Romania.

“When you are around her you feel her calmness, patience, love and an understanding of things way beyond the level of a child her age.”

Lisa was just two months old when she was identified as having CHARGE syndrome, a complex genetic condition that involves extensive medical and physical difficulties, including sight and hearing loss.

Mara and a team of specialists at the support centre, including teachers, psychologists and physiotherapists, have worked with Lisa and her family every week, using sensory stimulation and training to help her to communicate.

Lisa’s progress has been remarkable; she loves painting with her fingers, making puzzles and watching cartoons – and, after a year of early intervention, has taken her first steps.

First published: Friday 7 June 2013
Last updated: Wednesday 20 September 2017